Gluten Free?
has anyone tried a gluten free diet to see if the cycle of constipation/diarrhea can be stopped? I am considering it. We've cut back on dairy and sugar and still no real sign of relief for my now 8 year old. See More
Sharing and supporting those with IA
Latest Activity
Kim Connor replied to Kim Connor's discussion Discreet "pull ups" for 7.5 year old?"Thank you! Going to give a pair of these a try. Was about $37 for two pairs and that included shipping, so not too bad.
Kim"
Genesis Davies replied to Scott's discussion Age when your child received surgery to fix IA; colostomy reversal"Dorian had his reconstruction at 6 months and his reversal at 13 months. Our doctor didn't want to operate until he hit 10 lbs, which took quite a while!"
Michelle Dilley replied to michelle henson's discussion Hello"Hi shell, im Michelle and my daughter Libby was born with IA. We have come a long way since then (2006) she is now 5 and at school and they are brill with her. She has bladder control but only very little bowel control, she wears a pad at all…"
Suman replied to Jennifer Wilbanks's discussion About IA being genitic"My brother was born completely without physical problems, and my two daughters are also beautiful and perfectly healthy :-)"
Suman replied to Scott's discussion Age when your child received surgery to fix IA; colostomy reversal"I had my fix at about 18 months and colostomy reversal sometime after that, according to my parents.
However, potty training difficulties aren't always just related to delays in using sphincter muscles. In my case, my internal sphincter muscle…"
michelle henson replied to Blessing's discussion Hospital In Uk"My son had all his surgeries at great ormond street "
Genesis Davies replied to Kim Connor's discussion Discreet "pull ups" for 7.5 year old?"This is the one link that I've seen pop up all over, though I haven't tried them. http://www.myshreddies.com/incontinence-underwear/
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Genesis Davies replied to Mel Barber's discussion Keyhole surgery"A bit late on this one, but Dorian was up and trying to sit (making me super nervous!) within 12 hours of surgery. He didn't seem to have any pain at all and recovered very quickly from his anoplasty. Hope all goes well!"
Sue Thompson replied to Mel Barber's discussion Keyhole surgery"Hi Mel,
With Thomas they actually operated through his stomach (similar to a tummy tuck scar from one side of his belly to the other) so he had an epidural in for a couple of days as well as morphine to help with his discomfort but after the first…"
Mel Barber replied to Mel Barber's discussion Keyhole surgery"We actually stopped using bags when he was only 3 weeks old as he had mucus leaking from his fistula onto the adhesive strip of his bag so they literally wouldn't stay on. Instead we use half a nappy over his stoma and hold it in place with his…"
Sue Thompson replied to Mel Barber's discussion Keyhole surgery"Hi Mel,
I will drop you a text with my number. With the dilations it all depends really on the number you start on! They are metal rods with rounded ends (different size on each end - they look a bit scarey) - the consultant will do the…"
Mel Barber replied to Mel Barber's discussion Keyhole surgery"My mobile number is 07837608094. Text me and we can keep in touch. How long will we have to do dialations after his op. The surgeon also mentioned that there is a chance that they might damage the urinary tract duringhis op and he might end up with…"
Forum
Laxatives and Enemas
Discuss the never ending methods we use to attempt to keep our kids regular.
6 discussions
Potty Training
Getting ready to potty train an IA kid? Already long past it? Share here.
4 discussions
Diet
Are you using a special diet to help your IA child? Tips and advice are welcome! So are questions.
10 discussions
Surgery
Have questions or anxiety about surgery for your child? Get support from other parents.
18 discussions
School
Whether you are homeschooling, preschooling or public schooling, this is the place to discuss it.
2 discussions
Life in General
This is where anything that doesn't fit into the above categories should go.
14 discussions
Blog Posts
Whoops.
I haven't been around much lately as we prepare for the newest member of our family, due any day now! I wanted to apologize for the spam that has apparently popped up here. I found the settings for manual approval of members and that should help considerably!
I'm considering removing the blog post section as it is incredibly difficult to stay on top of posts placed here instead of in the forum section below. Please make sure you add your posts to the forum so everyone can…
ContinuePosted by Genesis Davies on February 12, 2012 at 5:23pm
New to Site and a Little about me!
My name is Jennifer. I currently live in Utah. I have 4 kids 2 girls, 2 boys over a 10 year span. My youngest was born with an IA March 2007. His take down surgery was at 15 months. To say it was a stressful situation would truly be an understatement. Everything that could go wrong. By the time we took him home at 7 weeks old he had been home 2 of those weeks and undergone 7 surgeries. From there it was not so much that yucky, but if it wasn't one doctor appointment it was another. I didn't…
ContinuePosted by Jennifer on December 7, 2011 at 10:59pm — 1 Comment
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